122: Amanda Gilpin's daughter was diagnosed with childhood dementia

Motherland Australia - A podcast by Stephanie Trethewey - Sundays

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When Amanda Gilpin first noticed some signs that her little girl Hollie was lagging a bit at school, she wasn't too concerned. But when she developed more sinister symptoms she sought medical help, and the truth was terrifying. Two years ago, Hollie was diagnosed with an extremely rare and incurable form of childhood dementia, known as Batten Disease - she's one of just two children in Australia who have it. Now, her family is hoping for a miracle, travelling far away from their home in Weste...